Des Moines, Iowa – Erin Sullivan-Wagner’s diagnosis with anal cancer in 2008 marked the beginning of a long, challenging journey that brought to light significant issues surrounding stigma and awareness of the disease. Just a month prior to her diagnosis, the mother of four noticed troubling signs, initially attributing them to hemorrhoids, a common affliction among women in her age group. As the symptoms escalated, Sullivan-Wagner, then 48, sought medical attention and soon faced the life-altering reality of cancer.

The diagnosis came less than two years after high-profile actor Farrah Fawcett revealed her own battle with anal cancer, a condition often overshadowed by misconceptions and stigma. At the time, many perceived anal cancer as predominantly affecting gay men, leaving women like Sullivan-Wagner with a sense of isolation. Research indicates that HPV, a sexually transmitted infection, is responsible for more than 90% of anal cancer cases, a statistic that few may fully grasp given the prevailing narrative surrounding the disease.

Reflecting on her experience, Sullivan-Wagner noted how discussions about her diagnosis felt taboo, echoing sentiments shared by many who face similar health challenges. “It was disheartening hearing my surgeon say he used to only see this in gay men, but now he sees it in women my age,” she recalled. This sentiment underscores a growing trend: anal cancer rates are rising among women, particularly those over 50, as awareness of the disease begins to shift.

Today, approximately 10,000 Americans are diagnosed with anal cancer annually, with women constituting around 70% of new cases. Despite being a rare form of cancer, it poses serious health risks, claiming nearly 2,200 lives each year. Federal data shows a concerning increase in incidence, especially among older women, with a 46% surge observed between 2005 and 2018.

Sullivan-Wagner underwent intense treatments, including radiation and chemotherapy, which put her on the path to remission less than six months after her diagnosis. The ordeal did not come without challenges, however. The treatments led to significant physical side effects that affected her sexual health and personal relationships. Scarring in her anal canal created barriers, causing a strain between her and her husband, Steve.

The couple encountered difficulties communicating their needs as their intimate relationship transformed. “I felt like we were falling apart,” Sullivan-Wagner shared. This emotional burden intensified during their brief separation in 2016, but they eventually reconciled after candid conversations about the impact of her health struggles on their relationship.

In response to her experiences, Sullivan-Wagner founded the nonprofit organization After Cancer, aimed at improving communication between patients and medical professionals regarding the sexual side effects of cancer treatment. “I want to ensure that essential topics like sexual health are addressed as a standard in cancer care,” she emphasized. She believes that raising awareness can prevent future patients from facing the same isolation and stigma she encountered.

As outreach initiatives become more robust, Sullivan-Wagner has observed a gradual reduction in the stigma surrounding anal cancer and HPV, especially with the introduction of vaccines that protect against the virus. She encourages anyone experiencing symptoms such as rectal bleeding or unusual discharge to seek medical advice promptly, as early intervention is crucial for effective treatment.

Sullivan-Wagner’s journey illustrates not only the challenges of living with cancer but also the pressing need for education and openness regarding sexual health issues faced by cancer patients. Despite the overwhelming odds, she remains hopeful, advocating for a future where patients can approach these topics without fear of judgment or misunderstanding. “It may feel daunting, but life can get better after cancer,” she said, a testament to resilience in the face of adversity.